| 高立,陈磊,潘兴丽,武艳群,关晶.农村地区先天性并指畸形患儿致家庭负担情况调查[J].济宁医学院学报,2013,(5):359-361 |
| 农村地区先天性并指畸形患儿致家庭负担情况调查 |
| The investigation and research about the burden to the family members of children with congenital syndactyly |
| 投稿时间：2013-06-20 |
| DOI：10.3969/j.issn.1000-9760.2013.05.018 |
| 中文关键词: 农村地区;先天性并指;家庭负担 |
| 英文关键词: Rural area;Congenital syndactyly;Family burden |
| 基金项目:2011-2012年度山东省医药卫生科技发展项目《农村地区出生缺陷患儿致家庭负担的相关性研究》(2011QW005);山东省2012年科学发展计划(政策引导类)医药卫生项目《出生缺陷患儿致家庭负担的相关性研究》(2012YD18047) |
| 作者 | 单位 | E-mail | | 高立 | 济宁医学院生物科学系, 山东济宁 272067 | | | 陈磊 | 济宁医学院附属医院, 山东济宁 272029 | | | 潘兴丽 | 济宁医学院生物科学系, 山东济宁 272067 | | | 武艳群 | 济宁医学院生物科学系, 山东济宁 272067 | | | 关晶 | 济宁医学院生物科学系, 山东济宁 272067 | jingguan1616@sina.com |
|
| 摘要点击次数: 4932 |
| 全文下载次数: 914 |
| 中文摘要: |
| 目的 了解农村地区先天性并指畸形患儿致家庭负担情况。方法 以生活质量综合评定问卷(Generic Quality of Life Inventory-74,GQOLI-74)为测量工具,对167名出生缺陷患儿的504名亲属的生活质量进行调查,同时结合症状自评量表(Symptom Check List 90,SCL-90)对其心理健康状况进行研究。结果 患儿家庭成员在GQOLI总分及4个维度方面得分均低于普通农村人口,但仅在总分及躯体健康维度、心理健康及社会功能维度3个维度方面得分差异有统计学意义(P<0.05);在性别方面,患儿女性家庭成员SCL-90的9个因子得分均高于男性家庭成员,但仅在抑郁因子得分差异有统计学意义(P<0.05);在年龄方面,发现患儿祖(外)父母SCL-90各因子得分普遍高于患儿父母,但仅在抑郁和精神病性两个因子得分差异有统计学意义(P<0.05)。结论 先天性并指畸形患儿对于家庭成员造成的经济负担不大,但精神方面的负担不容忽视。 |
| 英文摘要: |
| Objective To understand the congenital syndactyly to the burden of the family in rural area.Methods 504 accompanying people of 167 patients were assessed with GQOLI to detect the quality of life and SCL-90 to relevant the mental healthy of accompanying people.Results The score of BSSI of accompanying people were obviously lower than the general population in total score, physical health, mental health and social function dimensions of GQOLI, and the difference has statistical significant(P<0.05).All factor scores of accompanying people of SCL-90 with congenital syndactyly children were higher than the normal group, but only the difference in interpersonal relationship, depression, anxiety and psychosis-like symptoms had statistical significant(P<0.05).All factor scores of SCL-90 of female accompanying people were higher than the males, but only the difference in depression had statistical significant(P<0.05).The grandparents got higher scores in all factor scores of SCL-90 than the parents, but only the difference in depression and psychosis-like symptoms had statistical significant(P<0.05).Conclusion The burden of mental healthy was more serious than the economic burden to the famliy members with the children of congenital syndactyly. |
|
查看全文
查看/发表评论 下载PDF阅读器 |
|
|
|
